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1st Quarter - Report · 2026

Filing UUID
58152791-04cf-4bd8-9968-e208c63b1965
Type
Q1 — 1st Quarter - Report
Period
first_quarter
Year
2026
Posted
2026-04-20 19:13:59
Income (reported)
Expenses (reported)
$110,000
Expenses method
A
Filing document
Open on lda.senate.gov
Registrant (lobbying firm)

RARE DISEASE COMPANY COALITION

Contact
JENNIE UNGER SKELTON
Phone
+1 415-903-2800
Address
zip:20004, city:Washington, state:DC, street:1455 Pennsylvania Avenue NW, Suite 1150
Client

RARE DISEASE COMPANY COALITION

Healthcare

State
DC
Country
US
Effective date
2025-03-20
Issues lobbied + lobbyists (2)

PHA — Pharmacy

HR 1262 - Give Kids a Chance Act of 2025 S 3302/S 932 - Give Kids a Chance Act of 2025 HR 1762 - Lower Costs for Every Day Americans Act 42 CFR Part 513/514 - Global Benchmark for Efficient Drug Pricing (GLOBE) and Guarding U.S. Medicare Against Rising Drug Costs (GUARD) Models EO 14297 - Exemption for Orphan Drugs from MFN Proposals

Lobbyists:

Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); HOUSE OF REPRESENTATIVES; SENATE

TRD — Trade (domestic/foreign)

Proclamation 11020 - Section 232 Pharmaceutical Tariffs

Lobbyists:

Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE

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