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1st Quarter - Report · 2026

Filing UUID
81e708fb-c923-4bfd-88bf-491335f4157d
Type
Q1 — 1st Quarter - Report
Period
first_quarter
Year
2026
Posted
2026-04-20 16:39:20
Income (reported)
$50,000
Expenses (reported)
Filing document
Open on lda.senate.gov

Registrant (lobbying firm)

LEAVITT PARTNERS, LLC

Consulting.

Contact
MARK ROBERTS
Phone
+1 202-774-1404
Address
zip:20001, city:Washington, state:DC, street:601 New Jersey Ave NW Suite 350

Client

SAVE RARE TREATMENTS TASK FORCE

Dedicated to restoring the spirit of R&D incentives in the Orphan Drug Act.

State
DC
Country
US
Effective date
2023-12-31

Issues lobbied + lobbyists

HCR — Health Issues

Work with Congress and the Administration to ensure that the Orphan Drug Exclusion from eligibility for negotiation under the Medicare Drug Price Negotiation Program allows products to remain excluded so long as their FDA approved uses are exclusively for rare diseases. Reauthorization of the Pediatric Rare Disease Priority Review Voucher Program. Most Favored Nation (MFN) models and international reference pricing, including GLOBE and GUARD

Lobbyists:
  • ROBERT CLAYTON ALSPACH — covered position: Chief Health Counsel for Chairman - House E&C Committee (E&C);Counsel - E&C, Clerk - E&C, and Paid Intern - E&C
  • JOSH TRENT — covered position: Chief Health Counsel for Chairman - House E&C Committee (E&C); Deputy Chief Health Counsel - E&C; Professional Staff - E&C; Health Care Policy Advisor - Senate; Deputy Director Office of Refugee Resettlement HHS; WH Office of Presidential Personnel
  • mrs SHANNON ROHN DEERE
  • NOOR AHMAD [new]

Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE

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