f32281ff-6a59-4ca9-95ca-bbece6441ae9Q1 — 1st Quarter - ReportFAEGRE DRINKER BIDDLE & REATH LLP
Law firm
EVERYLIFE FOUNDATION FOR RARE DISEASES
Advocacy organization focused on issues of importance to the rare disease community
HCR — Health IssuesReauthorization of Pediatric Priority Review Voucher and the Consolidated Appropriations Act; Rare Disease Congressional Caucus; concerns regarding FDA review of rare disease therapies; hearing preparations.
Lobbyists: mr NICHOLAS PETER MANETTO (covered position: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)); NISHA QUASBA
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
BUD — Budget/AppropriationsFY 27 rare disease policy and programmatic requests pertaining to rare disease therapy development and research.
Lobbyists: mr NICHOLAS PETER MANETTO (covered position: Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)); NISHA QUASBA
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
MMM — Medicare/MedicaidAccelerating Kids Access to Care Act (S.752/H.R. 1509) and the Consolidated Appropriations Act.
Lobbyists: mr NICHOLAS PETER MANETTO (covered position: Legislative Assistant, Rep. Christopher H. Smith (R-NJ)); NISHA QUASBA
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
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