Issues lobbied + lobbyists
HCR — Health Issues
Research into spinal muscular atrophy, timely access to care, treatments, medical devices, and home and community-based services, Give Kids a Chance Act (H.R.1261/ S.932- FDA Pediatric Priority Review Voucher Program), DOD Congressionally Directed Medical Research Program & Peer-Reviewed Medical Research Program, Labor-Health and Human Services, and Education Appropriations bill, Family Caregiver Awareness, Resources, and Education (CARE) Partnerships Act, Pediatric Palliative Care Homes, National Institute on Disability, Independent Living, and Rehabilitation Research funding, Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Group 3 Power Wheelchair, Competitive Bidding for Tracheostomy, Ostomy and Urological Supplies; FDA Rare Disease Patient Listening Session, Coverage of Respiratory Assist Devices (RADs) and Home Mechanical Ventilators (HMVs), Accelerating Kids Access to Care Act (H.R. 1509/S. 752, National Institutes of Health funding; Medicaid home and community-based services, Public Law 119-21 Medicaid Community Engagement Requirements - disability and medically frail definition; Ensuring Patient Access to Critical Breakthrough Products Act (H.R. 5343), Veterans STAND Act (H.R. 6835), Veterans SPORTS Act (S. 3138) Consolidated Appropriations Act of 2026 (P.L. 119-75)
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); Defense, Dept of (DOD); Food & Drug Administration (FDA); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE
BUD — Budget/Appropriations
National Institutes of Health research into spinal muscular atrophy, U.S. Department of Defense Peer-Reviewed Medical Research in spinal muscular atrophy, Congressionally Directed Medical Research Program funding, Medicaid home and community-based services, housing (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), Defense Health Research Programs (Congressionally Directed Medical Research Programs), National Institute on Disability, Independent Living, and Rehabilitation Research funding, Labor-HHS-Education Appropriations bill, Transportation-HUD Appropriations bill, Defense Appropriations bill, Department of Education Office of Special Education and Rehabilitative Services staffing, Consolidated Appropriations Act of 2026 (P.L. 119-75), Assistive Technology Act program funding, Access Board funding
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); Defense, Dept of (DOD); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; Housing & Urban Development, Dept of (HUD); Natl Institutes of Health (NIH); SENATE; Transportation, Dept of (DOT)
CIV — Civil Rights/Civil Liberties
Supplemental Security Income Savings Penalty Elimination Act (H.R.2540/ S.1234), SSI Restoration Act, disability marriage penalty, Marriage Equality for Disabled Adults Act (H.R. 1389), Eliminating the Marriage Penalty in SSI Act (H.R. 320/ S.73), home and community-based services, Individuals with Disabilities Act (P.L. 101-336), ENABLE Act (H.R.1436/S.627), Seat Elevation in Group 2 Non-Complex Power Wheelchairs, Coverage of Standing Systems in Power Wheelchairs, Adult Changing Tables at U.S. Capitol, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement, Public Law 119-21 Implementation, including disability and medically frail definition for Medicaid Community Engagement Requirement; Veterans STAND Act (H.R. 6835), Veterans SPORTS Act (S. 3138), ABLE Tomorrow Act, the ABLE MATCH Act, and the ABLE Direct Deposit Act
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE
AVI — Aviation/Airlines/Airports
FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, "Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Rule II, Transportation-HUD Appropriations bill, disability-related air travel complaints & aviation consumer protections
Lobbyists: SARAH BELLISH; MAYNARD FRIESZ
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE; Transportation, Dept of (DOT)
DEF — Defense
U.S. Department of Defense Peer-Reviewed Medical Research Program Research in Spinal Muscular Atrophy, Funding for Defense Health Research Programs (Congressionally Directed Medical Research Programs and Peer Reviewed Medical Research Program), Medical Research for Our Troops Act (H.R. 3906)
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Defense, Dept of (DOD); HOUSE OF REPRESENTATIVES; SENATE
HOU — Housing
Transportation-HUD Appropriations bill, housing for people with disabilities (Sec. 811 Housing for People with Disabilities & Mainstream Housing Choice Vouchers), funding for disability and aging programs
Lobbyists: SARAH BELLISH; MAYNARD FRIESZ
Government entities lobbied: HOUSE OF REPRESENTATIVES; Housing & Urban Development, Dept of (HUD); SENATE
MED — Medical/Disease Research/Clinical Labs
medical research in spinal muscular atrophy, development and approval of spinal muscular atrophy treatments, National Institutes of Health funding, U.S. Department of Defense peer reviewed research in spinal muscular atrophy, U.S. Department of Defense Congressionally Directed Medical Research Program funding, Medical Research for Our Troops Act (H.R. 3906)
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Defense, Dept of (DOD); HOUSE OF REPRESENTATIVES; Natl Institutes of Health (NIH); SENATE
MMM — Medicare/Medicaid
Medicaid home and community-based services, Medicaid caregiving services, Medicaid funding, 2025 Budget Resolution, durable medical equipment, Pediatric Palliative Care Homes, H.R. 1, Think Differently Database Act (P.L. 118-225), Labor-HHS-Education Appropriations bill, Public Law 119-21 Implementation, including disability and medically frail definition for Medicaid Community Engagement Requirement
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Centers For Medicare and Medicaid Services (CMS); Health & Human Services, Dept of (HHS); HOUSE OF REPRESENTATIVES; SENATE
TAX — Taxation/Internal Revenue Code
ENABLE Act (H.R.1436/ S.627), Mobility Means Freedom Act (H.R.2320), Achieving a Better Life Experience (ABLE) Act (P.L. 113-295), H.R. 1, ABLE Tomorrow Act, the ABLE MATCH Act, and the ABLE Direct Deposit Act
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE
TRA — Transportation
FAA Reauthorization Act of 2024 (P.L. 118-63); Air Carrier Access Act (P.L. 99-435), Ensuring Safe Accommodations for Air Travelers with Disabilities Using Wheelchairs Final Rule, Disability Access to Transportation Act, accessibility in community transportation, Automated Vehicle (AV) Deployment and Research, Transportation-HUD Appropriations bill, surface transportation reauthorization
Lobbyists: SARAH BELLISH; MAYNARD FRIESZ
Government entities lobbied: HOUSE OF REPRESENTATIVES; SENATE; Transportation, Dept of (DOT)
EDU — Education
Labor, Health and Human Services, and Education Appropriations bill; IDEA Full Funding Act (H.R.2598/ S.1277), IDEA enforcement and oversight, Department of Education Office of Special Education and Rehabilitative Services staffing and enforcement
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Education, Dept of; HOUSE OF REPRESENTATIVES; SENATE
DIS — Disaster Planning/Emergencies
Disaster Relief Medicaid Act (H.R.3990/ S.2071), disaster planning and readiness assistance for individuals with disabilities
Lobbyists: MAYNARD FRIESZ; SARAH BELLISH
Government entities lobbied: Federal Emergency Management Agency (FEMA); Homeland Security, Dept of (DHS); HOUSE OF REPRESENTATIVES; SENATE