EVERYLIFE FOUNDATION FOR RARE DISEASES
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lobbying_client · US · canonical: everylife foundation rare diseases · 1 alias · 2 outbound · 3 inbound
Activity
Every typed-graph event involving this entity, newest first. Each row is one edge in the influence graph; click the date to jump to its provenance.
- 2026-05-18 · lobbied by Nicholas Peter Manetto · lda_lobbyist_client
- 2026-05-18 · lobbied by Nisha Quasba · lda_lobbyist_client
- 2026-01-01 · lobbied for by FAEGRE DRINKER BIDDLE & REATH LLP $40,000 · lda_filing
- 2026-01-01 · lobbied on Accelerating Kids’ Access to Care Act (s.752) · lobbying_bill_mention
- 2026-01-01 · lobbied on Accelerating Kids’ Access to Care Act of 2025 (h.r. 1509) · lobbying_bill_mention
Lobbying disclosures — as CLIENT (1)
Filings where this org hired a lobbying firm. Income + expenses come from the LDA disclosure.
| Posted | Filing | Year | Period | Registrant (lobbying firm) | Income | Expenses |
|---|---|---|---|---|---|---|
| 2026-04-17 | 1st Quarter - Report | 2026 | first_quarter | 12631 | $40,000 | — |
Aliases (1)
| source | id | name at source | jurisdiction | confidence | linked by | linked at |
|---|---|---|---|---|---|---|
| lda_client | 204150 | EVERYLIFE FOUNDATION FOR RARE DISEASES | US | gold | backfill_0029 |
Outbound edges (2)
| date | type | to | amount | role | source |
|---|---|---|---|---|---|
| 2026-01-01 | lobbies_on_bill | HR 1509 — Accelerating Kids’ Access to Care Act of 2025 | — | H.R. 1509 | lobbying_bill_mention |
| 2026-01-01 | lobbies_on_bill | S 752 — Accelerating Kids’ Access to Care Act | — | S.752 | lobbying_bill_mention |
Inbound edges (3)
| date | from | type | amount | source |
|---|---|---|---|---|
| — | Nisha Quasba | lobbied_for | — | lda_lobbyist_client |
| — | Nicholas Peter Manetto | lobbied_for | — | lda_lobbyist_client |
| 2026-01-01 | FAEGRE DRINKER BIDDLE & REATH LLP | lobbies_for | $40,000 | lda_filing |